Here is a list of resources where people with gastroparesis, family members, caregivers, and others can find help or take action on behalf of those affected by gastroparesis.
List of Resources
It is recommended that anyone with gastroparesis seek dietary counseling with a doctor and Registered Dietician to help individualize nutrition therapy and maximize nutritional benefits. IFFGD offers a free Dietitian Registry to help make finding nutritional support easier.
Living (Well!) with Gastroparesis
Answers, Advice, Tips & Recipes for a Healthier, Happier Life, by Crystal Zaborowski Saltrelli, C.H.C. This book is a comprehensive and easy to follow guide to navigating life after a gastroparesis diagnosis. Crystal Saltrelli is a Certified Health Counselor and gastroparesis patient-advocate. Available online at Amazon.com.
Gastroparesis Patient Association for Cures and Treatments (G-PACT)
A nonprofit organization dedicated to increasing awareness of gastroparesis and chronic intestinal pseudo-obstruction.
The Oley Foundation
A nonprofit organization whose mission is to enrich the lives of patients dependent on home intravenous (parenteral) and tube feeding (enteral) through education, outreach, and networking.
The National Institutes of Health (NIH) Gastroparesis Clinical Research Consortium (GpCRC)
A network of medical centers, sponsored by the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), was established to improve our understanding of the cause and natural course of gastroparesis and to advance the diagnosis and treatment of this disorder.
The Gastroparesis Consortium Clinical Centers include:
- California Pacific Medical Center, San Francisco, CA
- Johns Hopkins University, Baltimore, MD
- Stanford University, Stanford, CA
- Temple University, Philadelphia, PA
- Texas Tech University Health Sciences Center, El Paso, TX
- University of Louisville, Louisville, KY
- University of Michigan, Ann Arbor, MI
- University of Mississippi Medical Centers, Jackson, MS
- Wake Forest University Health Sciences, Winston-Salem, NC
The Swinburne University GastroparesisClinic.org Resilience Program
The Gastroparesis.Mindovergut.com resilience program is a new online intervention program that has been developed based on feedback from participants of the original online intervention program. The program has also incorporated recent advances in psychological interventions. The aim of the Gastroparesis.Mindovergut.com resilience program is to enable individuals to identify and use psychologically-focused strategies, in order to promote optimal well-being. This, in turn, will help reduce the impact of gastroparesis in their lives.
Visit https://www.gastroparesisclinic.org/intervention.php for more information.
The NIH, National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) offers free health information about gastroparesis and other digestive diseases on their website.
ClinicalTrials.gov. This site provides patients, family members, health care professionals, and members of the public easy access to information on clinical trials for a wide range of diseases and conditions including gastroparesis. The NIH, through its National Library of Medicine, has developed this site in collaboration with all NIH institutes and the FDA.
To learn more about participating in clinical trials, visit this IFFGD website.