"Wishes cost nothing, unless you want them to come true."
IFFGD have been a voice on Capitol Hill for years on behalf of the digestive health community. Our unified voice arises from individuals across the country speaking out to educate about functional gastrointestinal (GI) and motility disorders and to support meaningful, positive change for the those affected by these disorders.
Despite the progress that has been made, there is still too little federal funding for functional GI and motility disorder medical research. Patients frequently face issues regarding access to effective care and availability of treatment options.
You can help change this by becoming an advocate for digestive health. Your outreach will help educate policymakers about the needs of patients, and encourage them to increase funding for federal medical research into functional gastrointestinal and motility disorders (FGIMDs) to improve patient care.
You can join together with patients, family members, friends, and healthcare providers to ensure that we carry one clear, impactful message. Adding your voice to this growing chorus will help expand critical research, initiate important legislation, and facilitate the development of new treatment options. By working together in a coordinated fashion, we leverage the strength of our numbers behind efforts to bolster federal funding for research activities and improve care for patients.
Issues Affecting the Digestive Health Community
Overall Investment in the National Institutes of Health (NIH): The bulk of federally supported functional GI and motility disorder research is conducted through the National Institute of Diabetes, and Digestive, and Kidney Diseases (NIDDK). Increased support for NIH will enable NIDDK and other Institutes and Centers to continue to expand the FGIMD research portfolio and initiate critical new research activities focused on improving our understanding of these conditions and leading to the development of innovative treatment options. The current NIH research portfolio includes the NIDDK Gastroparesis Clinical Research Consortium, a network of clinical centers which focus on the etiology, natural history, and therapy of gastroparesis. We support increasing funding for NIH to a level of at least $32 billion in FY13.
Support the Functional Gastrointestinal and Motility Disorders Research Enhancement Act (H.R. 842): This critical piece of legislation seeks to advance our scientific understanding of functional gastrointestinal and motility disorders, such as gastroparesis, and improve treatment options for patients by encouraging and bolstering research. This bill calls on NIH to adopt and implement the FGIMDs-related research recommendations outlined by the National Commission on Digestive Diseases. In addition, this bill calls on NIH to partner with the Department of Defense (DOD) and the Department of Veterans Affairs (VA) to increase research activities.
The Pediatric Research Network Act (H.R. 225/S. 424): Many children suffer with painful, disabling, and in some cases life-threatening functional GI and motility disorders, such as gastroparesis. Increased pediatric research is badly needed so that a life-time of discomfort and costly medical treatment can be averted by individuals affected by FGIMDs. This bipartisan legislation calls on NIH to establish 20 pediatric research consortia.