Other Resources for the Gastroparesis Community

Here is a list of resources where people with gastroparesis, family members, caregivers, and others can find help or take action on behalf of those affected by gastroparesis.

Digestive Health Alliance (DHA). The grassroots arm of IFFGD where individuals can interact and take action to improve treatments and help find cures for functional GI and motility disorders, like gastroparesis, through coordinated fundraising, advocacy, and awareness efforts.

Living (Well!) with Gastroparesis – Answers, Advice, Tips & Recipes for a Healthier, Happier Life, by Crystal Zaborowski Saltrelli, C.H.C. This book is a comprehensive and easy to follow guide to navigating life after a gastroparesis diagnosis. Crystal Saltrelli is a Certified Health Counselor and gastroparesis patient-advocate. Available online at Amazon.com.

Gastroparesis Patient Association for Cures and Treatments (G-PACT), www.g-pact.org. A nonprofit organization dedicated to increasing awareness of gastroparesis and chronic intestinal pseudo-obstruction.

The Oley Foundation, www.oley.org. A nonprofit organization whose mission is to enrich the lives of patients dependent on home intravenous (parenteral) and tube feeding (enteral) through education, outreach, and networking.

The National Institutes of Health (NIH) Gastroparesis Clinical Research Consortium (GpCRC), http://jhuccs1.us/gpcrc/open/patients/patientlinks.htm. A network of medical centers, sponsored by the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), established to improve our understanding of the cause and natural course of gastroparesis and to advance the diagnosis and treatment of this disorder.

The Gastroparesis Consortium Clinical Centers include:

  • California Pacific Medical Center, San Francisco, CA
  • Johns Hopkins University, Baltimore, MD
  • Stanford University, Stanford, CA
  • Temple University, Philadelphia, PA
  • Texas Tech University Health Sciences Center, El Paso, TX
  • University of Louisville, Louisville, KY
  • University of Michigan, Ann Arbor, MI
  • University of Mississippi Medical Centers, Jackson, MS
  • Wake Forest University Health Sciences, Winston-Salem, NC

The GastroparesisClinic.org website offers a free, 6 week, online, psychologically focussed treatment program for Gastroparesis through their research program. The treatment program brings together validated psychological treatments such as cognitive behavioural therapy and mindfulness therapy. Visit http://www.gastroparesisclinic.org/intervention.php for more information.

You Can Take Part in a Clinical Trial/Study or Survey

The NIH Gastroparesis Clinical Research Consortium (GpCRC) is recruiting patients for their Gastroparesis Registry 2. Individuals with gastroparesis who sign up for the registry may be contacted about participating in trials or surveys about gastroparesis. The Gastroparesis Registry 2 will enroll new patients and patients from the initial GpCRC Gastroparesis Registry of patients, which was initiated in February 2007 and completed in March 2011. Aims of the data collections include helping to further define the natural history and clinical course of gastroparesis.

ClinicalTrials.gov, ClinicalTrials.gov. This site provides patients, family members, health care professionals, and members of the public easy access to information on clinical trials for a wide range of diseases and conditions including gastroparesis. The NIH, through its National Library of Medicine, has developed this site in collaboration with all NIH institutes and the FDA.

To learn more about participating in clinical trials, visit IFFGD website.

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